Skip to main content

Diminished Capacity and Communication

When you have a stroke, you need to rely on others for many things. Simple tasks are sometimes in insurmountable like tying a shoe, making dinner, personal hygiene, etc. 

When you have a stroke, people want to help you which is great though sometimes a stroke survivor needs to do things for themselves.

But sometimes, “people” who are most often the most close to you, seem to take for granted that survivors do recover and they have opinions which are real, well founded, rational, intelligent, and have value.

It is often the case that a survivor has to deal with well-meaning people – friends and family – who seem to believe that because an individual who had a stroke is less intelligent.  

When a survivor has a different opinion, it is easy for these people to say something like “well, he had a stroke you know, just humor him.” 

In the eyes of others, you are less than a real person….you have diminished capacity on all fronts. 

It a survivor objects about even mundane things, the people simply whisper that “before the stroke he would not have done this or that.”  When you have communication issues because of the stroke, it is especially because you just cannot find the words to make a point.  
 
When a survivor has to deal with this very real factor, it is hard to relate:  Is this because of the stroke? Are my different opinions valid?  Maybe I am not smart after all.  Maybe everyone is humoring me?

I have talked to so many survivors who have the same sentiments:  Take us seriously rather than taking us for granted.    


Comments

Popular posts from this blog

Phantom Blindness and Taking a Break after Strokes

I met with my eye doctor last week about taking some time off from my vision therapy. I have been doing therapy since my stroke almost two and a half years ago. I am tired, and a need a break. My doctor said, “This is completely understandable. Take some time off.” At the appointment, my doctor tested my vision. Because of the strokes, my vision was affected, and I have a problem in my field of vision on the right side. I have a deficit with my right side peripheral vision. However, it is getting better. During the test, I told him that I “sense things on the right side of my peripheral vision.” It seems that I know that something is there, but I cannot really distinguish what it is. He told me that there is a body of thought describing phantom vision or phantom blindness. A Polish researcher, L. Bieganowski, described this phantom blindness this way:    “The subject of the paper is the phenomenon of phantom vision. It occurs among the blind (or almost blind...

What is wrong with us! A lot: Aphasia, Apraxia, and Dysarthria

This morning, from 10:30 to Noon, at St. Lukes in Meridian Idaho, I participated in the “Aphasia, Apraxia, and Dysarthria Support Group” started a year ago through Idaho State University. We meet weekly.  So, what is wrong with us? Aphasia is the name given to a collection of language disorders caused by damage to the brain. A requirement for a diagnosis of aphasia is that, prior to the illness or injury, the person's language skills were normal. The difficulties of people with aphasia can range from occasional trouble finding words to losing the ability to speak, read, or write, but does not affect intelligence. This also affects visual language such as sign language . The term "aphasia" implies a problem with one or more functions that are essential and specific to language function. It is not usually used when the language problem is a result of a more peripheral motor or sensory difficulty, such as paralysis affecting the speech muscles or a general hear...

January

January 10th was the 13th anniversary of my first stroke. After 18 days in the hospital (including my second massive stroke were I lost almost everything) we celebrated my son’s seventh birthday. I wanted to celebrate my son‘s birthday but I had no idea the sensory overload would cause. The flashing lights, the unbearable noise of the crowds and the music, and loud conversations caused me to panic. In the midst of my brain damaged confusion, I had to go to the bathroom. At that point I really didn’t know how to navigate the restaurant even though I had been there many times. I didn’t know the concept of letters and I didn’t know what “men” and “women” were on the doors. My little son gripped my hand and said, “Daddy… I will take you to the bathroom.” Stumbling through the crowded restaurant I was scared. My son guided me to the proper door and asked if I needed any more help. After I finished I came out and he grabbed my hand and took me back to the booth. In January this year, We cele...