Thursday, January 30, 2014

Mrs. Lincoln and my seizure

On Monday, January 20, 2014, I had a seizure and I spent the night at Saint Alphonsus in Boise.

My strokes happened two years ago, and I had no idea that a seizure would be a possibility afterwards.  It would have been great to have forewarning because this was a shock emotionally and physically.

Seizures are bouts of disorganized electrical activity in the brain. They can happen spontaneously (primary seizures) or from brain damage (due to stroke).

Seizures come in different flavors. Last week, I lost consciousness. In May, I had an "incident" that resembled a seizure. I never lost consciousness, and I described my symptoms in detail. I had an aura on my right side, and it seemed that my right side vision was disrupted. It almost seemed that my right vision was a memory like a two second delay.  Even though I described that vividly, the doctors did not seem to know what happened.

Instead, they prescribed anti-seizure medication, Keppra, even though they said it was not a seizure.  The side effects were horrible. They included

"Throat Irritation, Drowsiness, Dizzy, Head Pain, Feeling Weak, Feeling Restless, Depression, Mood Changes, Anxious, Sensation of Spinning or Whirling, Low Energy, Pain, Loss of Appetite, and Easily Angered or Annoyed."

So, other than that, Mrs. Lincoln, did you enjoy the play?

I talked to my regular doctor last summer after the "incident," and I told him that the side effects of Keppra were disabling. He said, "You did not have another stroke or a seizure. It is crazy to take that drug when you do not need to."

Later that summer, my neurologists seemed to agree and I quit taking the drug.

But last Monday it all changed. I had the symptoms in May and last week: I had an aura which is a
perceptual disturbance experienced by some seizures before either the headache or seizure begins. It often manifests as the perception of a strange light and or confusing thoughts or experiences.  

Last week, my doctors told me that an aura is common when you have a seizure. It would have been helpful for me to know that last May when I described those symptoms.

Last week, I started to take Keppra and the side effects started to happen again. I have been miserable. Certainly, I need to take a pill to stop seizures, but what is the cost of my quality of life? Not just my life…my families’ life also.

Two days ago, we saw my neurologist again. There are other alterative medications I can try. And I will. All drugs have side effects, and I need to balance the medications to make sure they are effective but also do not make me a crazed zombie. When we were leaving her office, her partner seemed surprised that we will try a different drug. 

What I have realized, doctors are educated guessers. Until you have a stroke or a seizure, you have no idea what a person goes through. You are scared. You are confused.  You are mad. You are sad.

Every day you worry that it will happen again and be worse.

Every day. 

It would be easy to give up I suppose. But, I cannot live my life in fear. I am simply pissed off about my bodies limitations. 

Strokes: The gift that keeps giving. 

15 comments:

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I am sophie from Canada, I once suffered from a terrible and Chronic tinnitus ,in 2016, the doctor told me it has no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this noise was really terrible especially when am sleeping, i have this constant ringing in my ears for about 8 months, this was really a terrible noise ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how she was been cured from tinnitus through dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine i used it for 3 weeks as prescribed and i was totally cured of tinnitus within those week of usage,on thin now i have not hear anything ringing in my ears.if you need his help you can Contact this herbal doctor via his email drwilliams098765@gmail.com for help

karen dish said...

ALL THANKS TO DR WILLIAMS WITH HIS HERBAL PORTION I WAS COMPLETELY CURED FROM A TERRIBLE TINNITUS.
How can I ever stop thanking Dr William for the great deed he have done for me, i got an accident when I was 27 years old, from that day on i started experience ringing ear (tinnitus) i have taken all the western drugs prescribe by various doctor but to no avail . my tinnitus was very loud in the afternoon and I sleep less at night because of this problem i stop my work, few days later i was going through the Internet and I saw a post of so many people testifying about Dr William herbal remedies on how they was being cure for over many years suffering from tinnitus the story Really motivated me that I have to speak with my husband about it, and he said i should give him a try, i contacted Dr William and explain all i have be facing in my life. He assured me that everything is going to be fine if only I can get his herbal portion, i said yes and I requested for it, few days later the herb was sent to me in Kuwait,i started using it as instructed by Dr William for me to take it for 21 Days which I did, can you imagine after talking Dr William herbal medicine for just two weeks i started experience results, it was like a miracle,and now i am permanently cure from this terrible tinnitus, i promise that am going to publish his herb on thing my last breath for the great deed he have done for me. For those with similar ear problem should please contact him on his email address drwilliams098765@gmail his a good man and am proud of him.

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