Skip to main content

What is enough?

When my strokes happened, I had rehab at the hospital. My schedule was intense for me. Two times a day, I had occupational therapy, physical therapy, and speech therapy.

It was incredibly hard. I had to skip and do yoga on a Wii. I could not to it very well. I had speech therapy. Over and over, my patient therapist would ask me to say word with pictures. “Mark, what is a “comb?” What is an “A?” Etc.

I got out of the  hospital on Friday, January 27, 2012. On Monday, January 30th at 9:00 a.m., I started at “STARS,” St. Alphonsus Rehabilitation Services.   For about 10 months, I had therapy. I had mainly occupational therapy and speech therapy.

They had me doing all sorts of things. “PowerPoint, Excel, and Word:” That was my livelihood “before.” I had to complete “Hart Charts” and “Dynavision” for vision loss. I was a math whiz before the strokes. Now, even now, I cannot “do” math. I read financial, but I cannot express them.

In the beginning, it was 6 times a week plus “homework” on our computer. During the summer and fall, I concentrated on trying to drive again. In the hospital, one therapy told me “sorry, you will not drive again.”
In October, 2012, I drove.

After that hurdle, STARS basically told me that I was doing so well that they had nothing further that they could offer me in terms of treatment and therapy. A great STARS therapist told me “now, just live and practice on your own.”    

So I did.

But, I wanted to challenge myself in every way.  I went to stroke support groups just to be involved and to determine if there are other forms of therapy rather than STARS. In May, 2013 at the St. Alphonsus Stroke Support Group, we had a presentation about “vision and stroke.”

I got an appointment at “Focus Vision Therapy Center.” Dr. Scott Lewis and his staff gave me so much hope.

For four months (so far!), I have had therapy session two times a week. They have me do intense computer work. It is also very hard in so many ways. But, I want to challenge myself in every way possible. And they do that for me. 

They do not give up. They say thinks like “We will try this one or that one.”
I had a progress report with Dr. Lewis last week. I know that we are both happy that I am making great strides.

It has been two years since my strokes happened. I will never give up hope. I will continue to use every means possible like alterative medicine like acupuncture, vision therapy, etc.

I am grateful that doctors like Dr. Scott Lewis exhaust every opportunity to help me recover.

So, what is enough therapy? There will never be enough.

Comments

Popular posts from this blog

Phantom Blindness and Taking a Break after Strokes

I met with my eye doctor last week about taking some time off from my vision therapy. I have been doing therapy since my stroke almost two and a half years ago. I am tired, and a need a break. My doctor said, “This is completely understandable. Take some time off.” At the appointment, my doctor tested my vision. Because of the strokes, my vision was affected, and I have a problem in my field of vision on the right side. I have a deficit with my right side peripheral vision. However, it is getting better. During the test, I told him that I “sense things on the right side of my peripheral vision.” It seems that I know that something is there, but I cannot really distinguish what it is. He told me that there is a body of thought describing phantom vision or phantom blindness. A Polish researcher, L. Bieganowski, described this phantom blindness this way:    “The subject of the paper is the phenomenon of phantom vision. It occurs among the blind (or almost blind...

What is wrong with us! A lot: Aphasia, Apraxia, and Dysarthria

This morning, from 10:30 to Noon, at St. Lukes in Meridian Idaho, I participated in the “Aphasia, Apraxia, and Dysarthria Support Group” started a year ago through Idaho State University. We meet weekly.  So, what is wrong with us? Aphasia is the name given to a collection of language disorders caused by damage to the brain. A requirement for a diagnosis of aphasia is that, prior to the illness or injury, the person's language skills were normal. The difficulties of people with aphasia can range from occasional trouble finding words to losing the ability to speak, read, or write, but does not affect intelligence. This also affects visual language such as sign language . The term "aphasia" implies a problem with one or more functions that are essential and specific to language function. It is not usually used when the language problem is a result of a more peripheral motor or sensory difficulty, such as paralysis affecting the speech muscles or a general hear...

January

January 10th was the 13th anniversary of my first stroke. After 18 days in the hospital (including my second massive stroke were I lost almost everything) we celebrated my son’s seventh birthday. I wanted to celebrate my son‘s birthday but I had no idea the sensory overload would cause. The flashing lights, the unbearable noise of the crowds and the music, and loud conversations caused me to panic. In the midst of my brain damaged confusion, I had to go to the bathroom. At that point I really didn’t know how to navigate the restaurant even though I had been there many times. I didn’t know the concept of letters and I didn’t know what “men” and “women” were on the doors. My little son gripped my hand and said, “Daddy… I will take you to the bathroom.” Stumbling through the crowded restaurant I was scared. My son guided me to the proper door and asked if I needed any more help. After I finished I came out and he grabbed my hand and took me back to the booth. In January this year, We cele...