Skip to main content

Mark Van Gogh and Cholesteatoma



For months I have been plagued with earaches. I saw several PAs and finally my doctor.

The PAs essentially said, "You have a virus but it'll get better." It did not.

I was prescribed an antibiotic to get better. It did not get better.

When I finally saw my doctor he laughed and said, "Wow! Your left ear is a mess!"

Really....

Finally I saw an ear doctor and then an ear specialist/surgeon.

It seems I have "Cholesteatoma is a destructive and expanding growth consisting of keratinizing squamous epithelium in the middle ear and/or mastoid process. Although cholesteatomas are not classified as either tumors or cancers, they can still cause significant problems because of their erosive and expansile properties resulting in the destruction of the bones of the middle ear (ossicles), as well as their possible spread through the base of the skull into the brain. They are also often infected and can result in chronically draining ears." 

I do NOT need any more brain damage!

Here's a short video about it: 


My surgery was yesterday. Technically it was outpatient. However, given my medical history (you know, strokes and seizures), I went to my second home Saint Alphonsus Hospital.

The surgery went well. I'm very relieved. 

Though it is serious, because of my medical history we had to prepare in a different way.

I take Plavix which is a blood thinner. When you have surgery, blood thinners are not good. Therefore, last Sunday morning, I quit taking Plavix and instead started to inject myself with Lovenox twice daily, a different blood thinner.

My abdomen is now a series of colorful bruises! During that week of preparation, I also made sure that my "papers" were organized just in case: passwords, Power of attorneys, living wills, etc. 

When I woke up after the surgery, the first thing that I wanted know "am I OK?" The nurse said, "You are OK. You did not have another stroke." 

I prayed a lot about that. I'm so relieved.

I took a picture of my bandages send to friends. One commented that I am "Mark Van Gogh." Perhaps I need better friends.

Bad ear aches were second nature to me when I was a kid. I used to pray that my eardrum would rupture. I'd wake up and the pain would be gone. What was left was a stained pillow. 

My mom would put a terrycloth towel on my pillow to catch the oozing blood. Last night, my wife did the same. 

My life has come full circle. Earaches from my childhood could've been the cause of this condition that resulted in surgery yesterday.

"The same as it ever was!"






Comments

Rebecca Dutton said…
I'm so glad you came thru this surgery successfully. I hope your recovery is uneventful.

Popular posts from this blog

Same as it ever was

When I had my two strokes more than 13 years ago, I was 50 years old. In the ensuing years I’ve had some health issues related to my strokes and other assorted “age related” things. In May of 2023, I was diagnosed with plantar fasciitis. As a result I have endured two years of pain and the resulting lack of exercise. That summer I tried to walk regularly but my heel pain was too extreme. I tried to do exercises to relieve the pain but nothing helped. In September of 2023 I asked my doctor to give me a shot of Cortizone. We were headed to Boston for meetings and then headed to Maine. I just wanted to enjoy the trip without pain. It helped a lot. Six months later I had the same pain. I went to an orthopedic doctor who prescribed minor physical therapy. It worked for a bit and then the pain got worse. In September of 2024, my regular doctor gave me another round of Cortizone shots so I could travel to Phoenix. It really helped. For a while. In February of 2025, the pain got worse. I went ...

Phantom Blindness and Taking a Break after Strokes

I met with my eye doctor last week about taking some time off from my vision therapy. I have been doing therapy since my stroke almost two and a half years ago. I am tired, and a need a break. My doctor said, “This is completely understandable. Take some time off.” At the appointment, my doctor tested my vision. Because of the strokes, my vision was affected, and I have a problem in my field of vision on the right side. I have a deficit with my right side peripheral vision. However, it is getting better. During the test, I told him that I “sense things on the right side of my peripheral vision.” It seems that I know that something is there, but I cannot really distinguish what it is. He told me that there is a body of thought describing phantom vision or phantom blindness. A Polish researcher, L. Bieganowski, described this phantom blindness this way:    “The subject of the paper is the phenomenon of phantom vision. It occurs among the blind (or almost blind...

January

January 10th was the 13th anniversary of my first stroke. After 18 days in the hospital (including my second massive stroke were I lost almost everything) we celebrated my son’s seventh birthday. I wanted to celebrate my son‘s birthday but I had no idea the sensory overload would cause. The flashing lights, the unbearable noise of the crowds and the music, and loud conversations caused me to panic. In the midst of my brain damaged confusion, I had to go to the bathroom. At that point I really didn’t know how to navigate the restaurant even though I had been there many times. I didn’t know the concept of letters and I didn’t know what “men” and “women” were on the doors. My little son gripped my hand and said, “Daddy… I will take you to the bathroom.” Stumbling through the crowded restaurant I was scared. My son guided me to the proper door and asked if I needed any more help. After I finished I came out and he grabbed my hand and took me back to the booth. In January this year, We cele...